Our first week home from the hospital went really well. Ella's nasogastric tube came out at least once a day, usually several times a day, but thankfully it isn't too hard for me to put it back in (though not at all pleasant.)
The NG tube is surprisingly easy to manage on the go, as long as I make sure I pack everything. That's the hard part - remembering everything!
We had several outings, including the kids' favorite park.
Ella is doing much better, and she's gained a whole pound since we came home! Of course we never seem to have a completely smooth path, and we found out that she also contracted scabies from somewhere.